One delirious summer night when I was nineteen, I went on a blind date with a man I met on Craigslist who was covered in beautiful tattoos from head to toe. About fifteen minutes after he picked me up from the barn where I worked, he began to get annoyed with my admittedly shallow and casual knowledge of the horror genre (he said in the ad that he wanted to meet ‘a Sherri Moon Zombie character,’ not a horror critic, but I digress). Now, I might technically be a horror fan, he began to explain to me, but no, I was not a very good one, and he was starting to feel like I’d lied to him.
It was then that I noticed he had a set of knuckle tattoos that originated during the Napoleonic Wars, and hoo boy.
Ten minutes later, I was walking back to my workplace via someone’s ditch-side lane, smoking a cigarette and trying to convince my friend on the phone that I was telling the truth about this disaster. I was one scary lady, he had told me, interrupting my very well researched Special Interest Monologue about Nelson’s Navy by slamming on the brakes and kicking me out of his car. Yep, I explained, that really happened that way, I started sperging about the Napoleonic Wars and he told me I was too scary and he drove me almost back to work and he kicked me out of the car.
God, I love horror stories.
I tell fictional ones, too, which may seem a little bizarre given that I’m a weird bathrobe lady who can’t always talk but who also has no problem with loud, profane public meltdowns (and can you please feed my critters this week I’m in a psych ward and I’ll explain when I’m out). The horror genre isn’t always, shall we say, kind to people like me. And yet, I find that I can’t talk about disability—can’t write about my own experiences with autism and comorbid mental illnesses, can’t tell fictional stories about disability—without incorporating elements of a genre that objectifies and vilifies disability so frequently.
It’s been a lifelong thing, my fixation with horror. Steven King’s It was the first real horror I ever encountered, seven years old and terrified of the Bumble in Rudolph the Red-Nosed Reindeer. It was also my first introduction to queer people, but that’s another article altogether. I’d re-read it later on when my brain could actually parse a whole novel, but what I remember from the seven-years-old reading were (1) the exact meaning of a few words I heard on the bus and (2) the concept of something terrifying, shapeshifting, formless—something that was going to beat the everliving hell out of you if you strayed off into the dark.
It wasn’t that I was to this point unafraid of the formless, the slimy, the alien—it was that I hadn’t considered up until now that you could voice fear itself as a topic of conversation. Fear is not encouraged in rural communities, as a general thing, and I was weirdly afraid. I was weirdly everything, especially weirdly afraid, to the point where teachers and strangers and relatives would remark that there was something wrong with me. It was hoped that this was all just me being a pain in the butt, that with discipline and determination I could be less weird. Being afraid, like screaming in public or ‘splaining to strangers or being too squirmy or getting too excited about my books or not excited enough about sports, was against the rules.
So, I guess, there was a thrilling novelty to the idea that you could intentionally just be scared and not have to pretend that you were just okay with the current developments happening around you. Goosebumps books and Scary Stories to Tell in the Dark were petrifying when I was small and very anxious, but they were fascinating. The desire to feel fear and the ability to feel it without consequence were just new and cool. There was a kind of decadence to the act of being anxious, and I still have a soft spot for that kind of kitschy, over-the-top spooky: heads rolling off, dead girls haunting drunk drivers with their bicycle bells, inevitable eyeball removal. I miss that kind of spooky.
I have a different relationship with the kind of spooky I rolled into as I got older—as I began to learn that I wasn’t the only kid who got whisked away to therapy appointments for Behavior, who got threatened with the State Hospital, whose peers suspected them of all kinds of unrealistic evil.
There’s a lot of learning that comes with a diagnosis. My first one was autism. The simple meaning of that diagnosis is that I have a hard time speaking, a hard time understanding speech, and a really hard time understanding tasks with a lot of steps. The less simple meaning of that diagnosis is a little harder to explain. Carrying on an unscripted conversation with me, for example, is kind of a wild ride. If I’m comfortable around you, I just won’t look at you. If I’m not comfortable, I’ll aim my twitchy Kylo Ren stare right between your eyes and shred whatever object I happen to have in my hands.
Whether I’m comfortable with you or not, some things remain constant: my speech is best described as ‘Boomhauer Uncensored.’ I monologue, loudly and rapidly, about things that fall under my Special Interests. I can’t really control when I laugh, how loud I speak, how fast I speak, and sometimes whether I can speak at all. As you can tell from the story that began this article, my decision-making and overall common sense are so far above par as to be incomprehensible to the average person and even myself. I have a bizarre memory for detail: without trying, I can recall a specific fact pattern a judge made note of in a ten-year-old case, or I can recall the exact board game some bare acquaintances were discussing among themselves five months ago. It took me a while to learn that the first use of my memory made me Unique and Different and Not Really Disabled At All, More Like Extra Super Abled—while the second use of it just made me a dangerous predator who was obviously doing these things deliberately so I could make people uncomfortable.
And I was one of the lucky ones. I was tiny, white, and cute, with rich parents and a Real Diagnosis and a clean criminal record. It was unpleasant to be shuffled from school to school. It was not remotely the same thing as being funneled from school to jail, or school to the State Hospital, or school to jail to Wilderness Torture Camp where they literally starve you into obedience in the desert in Utah—all while being told that there was nothing wrong with you, that the only disability you faced in your life was your attitude.
So, maybe it wasn’t weird that we all bonded over bad horror movies: Rob Zombie flicks, outlandish exploitation movies, Edgy Internet Horror of the worst varieties. Maybe it wasn’t weird that we spent all that time gossiping and bonding in musty basements while we watched insulting parodies of ourselves stalk and cackle across the jumpy TV screen. Maybe we liked that they confirmed our suspicions, confirmed the things we picked up from the conversations our parents and probation officers were having about us, confirmed the content of the books they brought home about kids like us.
There’s this idea, you see, that gets posited at the beginning of the $5.00 Walmart flick about the insane asylum, about the madman in the trailer in the big empty field. There’s this idea that makes it scary that the Sexy Innocent Heroines in Tight Shirts are trapped in an insane asylum, trapped in proximity to people who have Issues like you.
The idea is that reasonable people are unsettled by you. Reasonable people do not want to be around you. Something about your reality, your boring, pain-in-the-butt reality, is fundamentally scary enough that it’s kind of cliché.
If I’m going to talk about the cliché horror of my youth, I have to talk about Saw, because there was a whole thing about Saw if you were a pretentious high school kid. The thing about Saw was that it wasn’t really a horror movie, it was a gore movie. The thing about Saw was that it wasn’t deep. It wasn’t psychological. I mean, you had to watch Saw, because if there was one thing a tiny queer theater nerd needed it was the edgelord cred that came with watching Saw and munching your pizza rolls and being ‘meh’ about it, but you also had to acknowledge that Saw was Bad.
And Saw was Bad for the same reason that the cheapo horror movies that we brought home from Walmart were bad. It relied on cheap scares—reasonable people are afraid of mutilation with needles and saws and broken glass and that whole bathroom situation. Saw isn’t deep like gothic novels or House of Leaves or Junji Ito comics or all the other cool stuff we were finding as we got older and read more. Bad horror like Saw, you see, just kind of shows you things we already take for granted. Saw doesn’t do anything new.
The point I’m trying to make here, talking about Growing Up Mentally Ill while surrounded by all of this dollar store horror, is that the notion of disability has been worked over in the genre so much that it has become corny. Ability and Disability are consistently at stake in horror works, especially ones designed to have a broad or visceral appeal. And of course the Victorian Hangover pieces of my college years (eldritch tentacles, weird racism, beautiful waifish misunderstood badasses locked in asylums) appealed to our culture’s centralization of ability. Madness, vaguely yet garishly described madness that either leads to death or a life of misery, was the backbone of so many of those stories we held up as Sophisticated Fantasy and loved so uncritically. Is there any outcome worse than disability? A lot of popular horror really struggles to come up with an answer to that question.
It’s a little weird, then, the disabled horror fan’s fixation with a genre that so often dehumanizes us and posits us as worthy or justifiable targets of violence. So much horror depicts disability as an end, or a brief stop down on the way to it—or does it? How many times does the last shot of the horror flick show the monster surviving to lurk another day? How many Saw films did they even wind up making?
See, there’s a thing with surviving disability in horror. If you survive your monstrous, evil disability in a horror movie, if you come back, it is not because you have been accepted by the loving arms of your understanding community. It is because you are a force to be reckoned with. You are going to wreck someone’s day, and it’s going to take a lot of different protagonists over the course of several profitable sequels to defeat you. You, my friend, are One Scary Lady if you are surviving your grisly and justified demise at the end of a horror story. You might even get to redeem your dubious franchise.
I was out of college—and done trying to go to grad school—when I went to go see Insidious II in the theater. It a few days after I got out of the psych ward, with some friends I’d made during that little adventure. It wasn’t really a movie as it was a collection of ugly tropes flung haphazardly at a screen. Cheap scares, bad scares, offensive scares—we spent more time complaining about having paid for the movie than actually watching it.
We got out about midnight, in the middle of a rainstorm unlike anything we’d ever seen. There’s nothing quite like coming out of a mental hospital and into a 500-year flood, let me tell you. The parking lot that night was a lake; the streets were creeks, and the rivers were devouring the highways. Everything was so reflective, and so loud, and so much—and we were here. We were still the same people we were before everything went south. We had not been defeated, and we would be back for a sequel, and then another one. The movie ended, because horror stories must end like all stories do, but we were still here, running around unsupervised, talking about things that made our families Uncomfortable, laughing at things we were supposed to be taking very seriously if we didn’t want to go back. There was a reason, I think, we had gone to see a bad horror movie that night instead of a mediocre romance.
Now, I hope I’ve made it clear this whole time that I’m not really sold, shall we say, on the idea that disability is inherently horrific. If I (a cute little white girl who Western Society will coddle condescendingly no matter what) can see the threat posed to me by horror movie scaryotyping, then it’s safe to assume that the rest of the disabled community is even less amused by the genre’s treatment of disability.
But I do find it very satisfying to work with the idea that Disabled People are Creepy, to at least take the idea in my own clammy, flappy hands.
In the weeks since The Drowning Eyes came out, I’ve seen several readers express a degree of horror at a story element I’ll just refer to as The Eyeball Thing. There was no question as to whether the Eyeball Thing was unsettling—it’s the kind of thing that sticks around in your mind for a while after you ponder it. The question people have concerning the Eyeball thing is why. Why did I feel the need to include a horror element in this upbeat fantasy story? Why did the price of living with her powers have to be so grisly for my protagonist?
The simple answer is that I like writing characters who survive unsettling realities. I want to read and write about people who learn to cope and live and move on with lives that seem like they should make people uncomfortable. It is so very gratifying, as a person who unsettles, to write unsettling characters and unsettling experiences, to rejoice in our survival when so many narratives kill us off or make us safe and tidy again. After all, some of the best classic spooky stories end with learning you’ve been at home with the horror all along.
Top image from Scary Stories to Tell in the Dark; art by Stephen Gammell.
Emily Foster is a fantasy author, a science fiction gardener, and a pretty good maker of tuna casserole. Her debut novella The Drowning Eyes became available from Tor.com in January 2016.
Hey, this was a fucking awesome essay (and strictly on the strength of it I am buying your novella, fyi). Thanks for writing it.
I adored this essay; thank you so much for writing it. I can’t wait to read your writing, and more importantly, to further re-examine my relationship to horror, which has been a major theme in my life — also a mentally-ill life, weirdly like yours as described here actually. I do the can’t-talk-and/or-loud-profane-monologue thing too! …and you just made me feel better about my ‘weird bathrobe lady’ traits than I think I ever have before. Thank you for talking about it. I was only ever diagnosed with superbug-style chronic major depression before escaping the system, but have always suspected and others have suggested mild autism too. I stim like crazy, too, usually rocking, which adds a great — I think — sort of Alan Moore patois to the whole image. Kind of a um sweeny-todd-before-coffee look. ::coughs uncomfortably:: :P
Anyway, sorry for the TMI, but I wanted you to know how much it means to find something like this, that not only comes from the same place as my brain and my (currently completely f’d up) life, but that touches on why both writing and horror are so oddly, desperately dear to my existence. You seem to really get why this dinged-up spaceship I ride around in has extra handles (with teeth) that are vitally important to my piloting skillz, but which others insist aren’t hooked up to anything. Good feels, and I needed those. :) Thank you again!
I, for one, wouldn’t mind hearing the Napoleonic Tattoo Monologue, having spent several years immersed in a Nelson’s Navy RPG (R.M.S. Scourge, at your service!) Otherwise, why does someone with a mental disability automatically have to go on the ‘evil’ side of the ledger? There have been a lot of excellent kids’ books being published lately with protagonists who take advantage of the fact that they don’t see things the way ‘normal’ folks do; it gives them an edge. Even the estimable Sherlock Holmes is often characterized in modern writing as being somewhat on the Asperger scale, or possibly OCD.
Speaking as a TBI survivor, I find myself in complete agreement. I prefer not to be defined by my mishap; I prefer to be defined by my methods of overcoming it.
It would be better if horror movie makers took the time to ponder what it means to be disabled. One thing I like – no, make that love – about Stephen King is that he never makes such easy assumptions. Cujo is a lovely dog – until he suffers from an illness that very specifically destroys his ability to relate to others. Misery is not disabled – she’s obsessed, and it’s her obsession that is destructive. The Tommyknockers aren’t malicious, just single-minded, and not even disabled except by entropy – and they wind up destroying themselves and the community they leach from.
In order to avoid making a simple-minded mockery of the art of film-making, it would be an idea for horror film makers using disability as a topic to do as Day Lewis did and spend some time in those roles themselves. Empathy’s not a crime.
I’m not good at reading between the lines, but it wouldn’t surprise me–based on how I often feel about things–if being treated as a Predator turned out to be a pleasant, perhaps triumphant, experience. Not clear to me, though (it’s been years now), Cliff Robertson’s (Charley’s) thoughts when his “normal” co-workers realized he wasn’t their safe little dimwit anymore.
“It took me a while to learn that the first use of my memory made me Unique and Different and Not Really Disabled At All, More Like Extra Super Abled” THIS! My brother is autistic and his memory is worth writing an awesome scifi book about!! I have a very neuro-atypical family and I loved this essay. Relying on “odd” medical conditions as script fodder is everywhere in tv and film. My son, who has severe Tourette’s Syndrome, gets to live with all the comedy movie and tv sitcom jokes. He blows it off pretty well but, as the mom, it makes me a little sad. His wife is bipolar (imagine that household!! ;) and she gets the crazy psych-lady stares after public meltdowns and has spent her share of time in psych hospitals. So, we are pretty sensitive around our place to insane asylum tropes. too. Will be picking up your book!
As well, Gary A. Braunbeck and Lucy A. Snyder are both writers who have been dealing with disability in horror/fantasy fiction for years. And they do so with empathy and great craft. I recommend them both without reservation.
I don’t think it is possible to put into words how truly awesome this essay is!
You Rock!
This is an absolutely amazing essay and you rock SO. MUCH. Thank you for writing it.
I agree with your conclusion. Any story is about overcoming a challenge. Whether it be a antagonist, disaster or whatever. It is about the journey to overcome. I find particular issue these days in writings about mental illness. To me, the battle seems too easy. We have the main character or friends suffering through the story. In the end, they are “all better now.” Can we not delve deeper? We need to understand that in many cases mental illness is beyond that. It is like having a limb or organ removed. You cannot recover. Instead, you are able to build a strong fortress to cage your demons – Richard Correll http://www.5yearsafter.com
@10– Richard (re Manifesto): You’d figure since the folks of West Virginia must’ve known or heard or read about (maybe worshiped, if they were pro-rebel) the original General Beauregard, CSA, they’d rather this new general spell his name the same way. Unless they plumb forgot all that ancient 1860s stuff.
. . .Didn’t intend to sound so petty. You’ve got some good stuff there.
I enjoyed your essay although I don’t like horror: my limit is dark fantasy.
Personally I object to representations of disability as evil because there’s been so much of it. People have told me I should be happy about, supportive of and positive towards novels with poor representations of disability if the people with disabilities aren’t evil, even if the authors have fallen into some of the other tropes like the magical healing, the magically-gifted-so-not-really-disabled and simply not-medically-accurate oubliettes.
Why should I be grateful for poor representations of disability? Poor representations confirm misconceptions and prejudices like, for example, the common belief that people with albinism are just paler than other people when the lack of pigment causes poor eyesight to varying degrees right up to blindness. A good representation in a kick-ass story could do so much to set the record straight.
However, I have to say that your idea of disability causing an altered reality is interesting and I love your idea of a disabled person being such a bad-ass that it takes sequels and a group to take her down.
Hafta say, though, that I’d prefer a shades-of-grey: make the person with a disability and the people who take her down all ambiguous so no one is a hero. Or make it horror because the PWD is a victim and the hunters are the bad people. Hence tragic ending.